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The Resource An ordinary day : kids with rare genetic conditions, Karen Haberberg ; photo editor, Robert Peacock

An ordinary day : kids with rare genetic conditions, Karen Haberberg ; photo editor, Robert Peacock

Label
An ordinary day : kids with rare genetic conditions
Title
An ordinary day
Title remainder
kids with rare genetic conditions
Statement of responsibility
Karen Haberberg ; photo editor, Robert Peacock
Creator
Author
Photographer
Subject
Genre
Language
eng
Summary
  • An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences
  • Life often presents challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and will we can find inspiration and hope. An Ordinary Day displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions. Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs, 5-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a 9-year-old boy who finally learns to eat with a spoon after many failed trials. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions. The every day moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all. Poignant and revelatory, An Ordinary Day illuminates what it means to be a family. -- Publisher description
Member of
Cataloging source
YDX
http://library.link/vocab/creatorName
Haberberg, Karen
Dewey number
779/.2092
Illustrations
illustrations
Index
index present
Literary form
non fiction
http://library.link/vocab/subjectName
  • Genetic disorders in children
  • Genetic disorders in children
  • Genetic disorders in children
  • Parents of children with disabilities
  • Children with disabilities
  • Rare diseases
  • Portrait photography
  • Photography, Artistic
Label
An ordinary day : kids with rare genetic conditions, Karen Haberberg ; photo editor, Robert Peacock
Instantiates
Publication
Copyright
Note
Includes index
Carrier category
volume
Carrier category code
  • nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
ocn972243115
Dimensions
24 x 32 cm
Edition
First edition.
Extent
175 pages
Isbn
9781576878613
Lccn
2017946119
Media category
unmediated
Media MARC source
rdamedia
Media type code
  • n
Other physical details
illustrations (chiefly color)
Stock number
181041
Label
An ordinary day : kids with rare genetic conditions, Karen Haberberg ; photo editor, Robert Peacock
Publication
Copyright
Note
Includes index
Carrier category
volume
Carrier category code
  • nc
Carrier MARC source
rdacarrier
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Control code
ocn972243115
Dimensions
24 x 32 cm
Edition
First edition.
Extent
175 pages
Isbn
9781576878613
Lccn
2017946119
Media category
unmediated
Media MARC source
rdamedia
Media type code
  • n
Other physical details
illustrations (chiefly color)
Stock number
181041

Library Locations

    • Shaw (Watha T. Daniel) LibraryBorrow it
      1630 7th St. NW, Washington, DC, 20001, US
      38.9123733 -77.022493
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